I am dying

I had a new symptom from my FTD yesterday.  I was suddenly not able to speak.  I tried.  The words were in my mind.  They wouldn’t come out.  I tried to force them out, but the mouth wouldn’t work.  Selchietracker gave me some Nameda, which seems to help my neurological symptoms.  I was able to speak after some 30-40 minutes.  These new symptoms are very scary.  I wondered if I would ever be able to speak again.  What would my life be like if I couldn’t?

Today, I participated in the Wednesday Chat for FTD sufferers at the FTD forum.  I lost track of time and almost forgot about it.  I had some trouble signing into the chatroom, so I was only able to get in during the last of the conversation.  It is helpful to be able to talk to other people who have FTD.

If you suffer from FTD, I suggest you join us on Wednesdays at 7 p.m. Central Standard Time.  For further info see the post about FTD chat on new posts under the FTD Support Forum.

I think I’ll head back to the water for some rest and relaxation.

Tags: FTD, speech problem

This entry was posted on 2009-11-12 at 06:46 and is filed under FTD. You can follow any responses to this entry through the RSS 2.0 feed. You can leave a response, or trackback from your own site.