Comments for I am dying

Comment on Promising treatment for CRPS/RSD by treatment for autism

treatment for autism — Sun, 11 Mar 2012 12:44:51 +0000

treatment for autism…

[...]Promising treatment for CRPS/RSD « I am dying[...]…

Comment on Opioid Treatment and the Chronic Pain Patient by cure de slabire

cure de slabire — Wed, 22 Feb 2012 23:24:47 +0000

cure de slabire…

[...]Opioid Treatment and the Chronic Pain Patient « I am dying[...]…

Comment on Flupirtine: New Help for Fibromyalgia, FTD? by sandra

sandra — Wed, 22 Feb 2012 11:04:04 +0000

As a long term sufferer of fibromyalgia pain ,now quite universal but mostly in my neck i will explore flupirtine on line and with my GP.
But wont hold my breath.They prefer to keep me on amiltryptiline which is cheap and cheerful.It does kill the pain to some extent and helps me sleep. But causes drowsiness

Comment on Flupirtine: New Help for Fibromyalgia, FTD? by Lucy

Lucy — Wed, 22 Feb 2012 10:56:24 +0000

Yes Professor Davies in London is prescribing it with some success. He is at the ME/CFS clinic in Devonshire Street. Good luck.

Comment on Writing a comment to FDA about proposed REMS by Sidney Hepner

Sidney Hepner — Mon, 06 Feb 2012 07:08:51 +0000

Appreciate you sharing, great post.Much thanks again. Will read on…

Comment on Living with FTD-Frustration of Diagnosis and Support for FTD Patients by Phil Hong

Phil Hong — Thu, 26 Jan 2012 00:11:33 +0000

Hi,
I am totally sympathetic with your circumstances.
I was diagnosed with FTD about 2 years ago.
This was preceded by futile searching with my wife (who has a medical background) because of increasing cognitive difficulties.
My symptoms are not classic, although like a Rorshach test, you can interpret anything after the diagnosis.
There is no support group for FTD patients in Denver, just for caregivers. I do go to an Alzheimer’s support group.
If you know of a way to contact a support group for patients who are aware of their disease, are intelligent and willing to discuss personal feelings and observations, please let me know.
Probably on-line is best because face-to-face requires transportation, etc.
Thanks,
Phil

Comment on Living with FTD-Frustration of Diagnosis and Support for FTD Patients by Diana Drew

Diana Drew — Sun, 22 Jan 2012 22:43:00 +0000

I have a father that is sexually inappropriate like Annie’s loved one. He is demanding, aggressive, blaming, critical and relentless that he is always right about everything. He is still found capable to make decisions regarding his care and finances although we help him with everything because he really isn’t capable. The writing is on the wall that he will have a serious accident or run through his entire finances if he is left to do what he wants. We argue with him about everything. He doesn’t make sense anymore and the father I knew doesn’t really exist. This selfish, demanding, abusive person has overtaken his body. This is probably the worst thing I have ever had to deal with in my life. I feel so stressed that it is indescribable. Although I am a cancer survivor (twice), I would say the cancer was less stressful to deal with than what my father is going through. No one seems able to understand or help. My father used to be an entertainer so he puts on a nicer act for strangers and treats his family terribly to say the least. I wouldn’t wish this on my worst enemy. If only he were deemed incapable we could give him the care he so badly needs and he wouldn’t be taken advantage of by certain whores and strippers, etc. It’s disgusting to watch my father go through his late years with this FTD and not be forced to get the proper care. Sad, sad, sad.

Comment on Chronic pain- Recent Updates by michael lawson

michael lawson — Sat, 17 Dec 2011 15:29:46 +0000

i know youmean well,but my pain is hell i can’t control it by control my body i’m really dieing in pain so bad i would wish it on anyone ,i was injuryed in 2003 broken neck ,shoulder,left arm deformed,lower dicin back dislocated had 3 surgerys was told all of them would fix my pai or lower it where i could take it,i can’t sleep right or eat or use the bathroom good or at all i have headaces from hell all the time icall doctors all the time go to medical clinic ,it like they would me to die or the pain to get worst where i just say to hell with it and end it i’m calling my congressman ,and the wasington post they a reporter who wants to do my story before i die

Comment on American Values and Health Care Reform by Insomnia

Insomnia — Sat, 10 Dec 2011 07:41:15 +0000

Insomnia…

[...]American Values and Health Care Reform « I am dying[...]…

Comment on Fresh spoor by Freda Colley

Freda Colley — Fri, 09 Dec 2011 17:36:48 +0000

Thankyou for this update – thoughts and prayers for mermaid and for you both at this difficult time.